A delusion is a false belief that persists in spite of evidence to the contrary; an idea or object that is perceived incorrectly by the delusional person.
Dementia symptoms often include delusional thinking, meaning that the person with dementia may perceive things quite differently than they really are.
Within a world where what we see, touch, hear, smell, and believe can be validated by scientific observation, delusions are considered dangerous. Has anyone ever benefited from being delusional? Most of us would emphatically answer, “No!”
But the world we call “normal” can be quite different from the world of our loved ones living with dementia, and I am going to suggest that it is not always helpful for care partners to dismiss, deny, or denounce their delusional beliefs and behaviors.
People with dementia can totally lose recent memories, but may have strong and even accurate memories of an earlier time in their life; frequently during their early adulthood. While our reality remains grounded in the present, theirs becomes a facsimile of their past. As a care partner, when we see evidence of this, we should not treat it as a dangerous or harmful delusion, but remind ourself that their reality is as real to them as ours is to us.
By trying to understand their reality and work within it, we can actually help our loved ones living with dementia. Rather than correct their misconceptions and argue about what is “real,” try to enter their reality and encourage them to talk about it. This is what we call Validation Therapy. Don’t argue; agree. Don’t correct; validate!
I know of a woman in a memory care community who spent many hours each day talking to herself in a mirror. Rather than feel pity for this “delusional” behavior, the staff spoke with her and learned that she thought she was talking to her sister. They also noticed that she seemed most happy and calm during and after these conversations.
Her behavior was doing no harm, so they did not discourage it. In fact, when she seemed anxious or agitated, they took her to the mirror to talk to her beloved sister. By indulging her “delusion,” they protected her dignity and elevated her quality of life.
A care partner’s task is not easy. We must be grounded in our own reality to keep our loved ones safe and secure, but we must also understand and enter their reality to validate their beliefs and feelings.
As the health of our woman in the story declined, finally she could no longer walk and had to be placed in a wheel chair. When this happened, the understanding staff of her community lowered the mirror on the wall so she could continue to enjoy wonderful conversations with her sister!
This, my friends, is not delusional thinking. It is truly compassionate care.
Until next time remember: “We all deserve the Best”
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3 Replies to “Working within your loved one’s reality!”
I went to two of your seminars a few years ago with my husband, Phil who has alzheimers and your demonstration was so helpful. Phil is now experiencing delusions and desire to go home. I try to respond within his reality, by saying we are staying here in Fl. to enjoy the warm weather, etc. He asks about his parents, wondering where they are and why we are not calling them or inviting them over. He also thinks I am his Mom at times and wonders where Carole is. I am struggling with how to respond in his reality. I would love to join your zoom group. Blessings, Carole Geibel
Hello Carol, I am sorry that Phil is changing in his journey of dementia. I would love to have you join us in the online support groups. I have provided you with the links, we meet every week on Tuesday afternoon and Wednesday evenings, you can come to one or both and we will see if we can help you through this change in Phil. The delusions are common in the dementia journey and we may be able to lessen some of them the more we talk. Thank you for connecting with me. Keep in touch and talk soon. I will also email them to you.
We meet every Tuesday afternoon and Wednesday evenings. I have provided you with the links, they will be the same each week.
Topic: Care partner Support Group
Every week on Tuesday at 1:00 pm
Join Zoom Meeting using this link below:
Meeting ID: 913 7638 1906
Topic: Care Partner Support & Networking Group
Every week on Wednesday at 7:30 pm
Join Zoom Meeting using this link below:
Meeting ID: 991 4488 9608
I would like to join your zoom group. I made a comment earlier, but it said that it was awaiting moderation. I don’t know what that means.